WISHES FROM YOU
To celebrate our 5th anniversary, we decided to share the wishes and words of
gratitude received from our beloved patients, their families, doctors, foreign partners and volunteers.
These wishes remind us why we do what we do and the profound impact our work can have
on the lives of pediatric HAE patients.
Starting on December 1, we are opening HERE a virtual advent calendar (in Czech
language only), where every day we will reveal wishes, memories and messages from those who are an integral part of the success of our organization.
tHAEnk you for your support!
Starting on December 1, we are opening HERE a virtual advent calendar (in Czech language only),
where every day we will reveal wishes, memories and messages from those
who are an integral part of the success of our organization.
What have we achieved in 5 years of activity?
Since the establishment of our organization, we have implemented multiple projects focused on supporting and educating HAE patient families.
Our most significant projects include workshops, inclusive scholarships, summer camps for
the patient community, as well as awareness raising exhibitions of HAE junior drawings.
Each of these projects contributes in a different way to improving the
quality of life of our patients and their families, raising disease awareness, sharing
important information and creating a strong community.
Message from Camelia C. Isaic, chairwoman:
HAE Junior celebrates its 5th anniversary!
I would like to take this opportunity to express big
tHAEnks to all members of our community and
partners who help us improve the quality of life of
children and youth with HAE. By working together,
our juniors are every day getting stronger than HAE
– a disease that limits them, yet does not break them.
Our educational activities, family camps and projects help develop creativity and key competences of HAE juniors. In addition, we also provide regular information services on living with HAE and conduct campaigns to raise HAE awareness among healthcare professionals as well as the general public. Above all, however, our activities help (not only) Czech HAE patients better cope with their difficult journey and lead a fulfilling life despite this incurable diagnosis. I look forward to the years ahead working together for a better future for HAE juniors & their families.
The partners of the campaign for the 5th anniversary of HAE Junior patient organization are:
